Dementia and sight loss: Developing social care practice in different housing settings
This independent project was commissioned by the National Institute for Health Research School for Social Care Research. The project ran from July 2012 until January 2014 and was led by the Centre for Housing Policy at the University of York, in collaboration with the Association for Dementia Studies at Worcester University, Bournemouth University Dementia Institute, and the Cambridge Centre for Housing and Planning Research at Cambridge University. The overall aim of the project was to investigate how best to provide care and support for adults living with sight loss and dementia in a range of housing settings.
Meeting the social care and support needs of people with concurrent dementia and sight loss presents complex challenges. However, the policy aspiration to enable a greater proportion of people with complex needs to live and die in their own homes requires the specific challenges of providing care and support in these settings for people with concurrent dementia and sight loss to be understood and addressed. Previous research has highlighted a number of factors which limit the effective delivery of social care and support specifically for people with concurrent sight loss and dementia, not least that models of care need to respond to both conditions, rather than working in isolation.
This project aimed to address this gap by building evidence for developing practice guidance in social care and support for people with dementia and sight loss in a range of housing settings. The research drew on the experience of people living with dementia and sight loss, family members where present, and a range of service providers, commissioners and support planners to explore current practice in social care from a range of perspectives, and to identify models of practice, areas where practice could be enhanced and improved, and areas where there is a divergence of evidence.
The research team brought together the necessary range of expertise and skill sets from across the four partner universities and key experts from the Thomas Pocklington Trust and Housing and Dementia Research Consortium in order to address the complexity of examining models of social care delivery to people with concurrent sight loss and dementia within independent living settings.
The findings from the Project can be viewed here
The main outputs from this project will include evidence-based practice guidance and key principle statements highlighting how social care and associated support can best be delivered to people with dementia and sight loss living in a range of housing settings. The development of the guidance included a stakeholder Consensus Event with practitioners, key experts and people with dementia and sight loss and family members. The results will be disseminated to a wide range of audiences via a programme of activities and through a diverse range of media including lay summaries, presentations and online resources.
For further information please contact:
Dr Simon Evans: firstname.lastname@example.org
The other partners on the project were:
- Karen Croucher, Research Fellow, Centre for Housing Policy (CHP), University of York Karen.Croucher@york.ac.uk. For more information about CHP see: www.york.ac.uk/chp/
- Professor Anthea Innes, Bournemouth University Dementia Institute (BUDI), Bournemouth University email@example.com. For more information about BUDI see: blogs.bournemouth.ac.uk/dementia-institute/
- Anna Clarke, Cambridge Centre for Housing and Planning Research (CCHPR) firstname.lastname@example.org. For more information about CCHPR see: www.cchpr.landecon.cam.ac.uk/
- The Thomas Pocklington Trust, www.pocklington-trust.org.uk/
- The National Institute for Health Research (NIHR), www.nihr.ac.uk and the NIHR School for Social Care Research www.sscr.nihr.ac.uk