News archive

News Archive 2018

Interested in participating in research? 

Join Dementia Research (JDR) is a website that helps people who would like to participate in dementia research to register that they are interested, so that researchers in universities and health and social care can contact them about research that they might be interested in. There is lots of information on the website to help you decide if you would like to do this. 

The website also contains lots of news about studies that are taking place as well as research findings. 

Are your environments dementia friendly? 

The King's Fund Environmental Assessment Tools - Care Home Assessment Tool, Housing Assessment Tool, Health Centre Assessment Tool, Hospital and Ward Assessment Tools 

The Association for Dementia Studies (ADS) is pleased to let you know that the Environment Assessment Tools, which were developed by The King’s Fund, can now be downloaded from the Association for Dementia Studies webpages by following the link below. 

King's Fund environmental assessment tool 

 he pages include a brief summary of their development and how to use the assessment tool. You can also download the Alzheimer’s Society booklet based on the assessment tools which was designed to help people living at home with dementia make changes to their accommodation.  

If you would like to hold a workshop for your organisation or have an expert visit your premises to help you to conduct your assessments, please email dementia@worc.ac.uk 

Dementia 2020 Citizens’ Engagement Panel

The Department of Health for England is looking for people living with dementia and/or their carers to become members of this Panel during the next two years. Its aim is to inform the Government as to whether their plans for dementia care and support are making a difference to people’s lives.

In 2015 the 2020 Dementia Challenge stated its aim to make England the best place in the world to live well with dementia. The Government believes it is critical to gather the views of people who have received a diagnosis of dementia and their family carers and has asked Opinion Research Services (ORS), an independent research company, to recruit to the Dementia 2020 Citizen’s Engagement Panel. 

Members will be invited to respond to surveys and some will also take part in group discussions or interviews about their direct experiences of dementia services and support. 

If you want to join the Panel or find out more about the research project please see the Opinion Research Services website


The RSAS is looking for dementia carers

The RSAS is creating a National Dementia Carers Centre and is in the process of designing and piloting some innovative residential programmes for carers. They need carers to help with some market research and then later in the year and during 2018/19 to attend their programmes. Each programme runs for three consecutive days ( 2 nights away from home). The programmes are free at this stage, so all accommodation and food is paid for in addition of course to the actual attendance at the programme. The Association for Dementia Studies will be collaborating to design a robust evaluation of the pilot programmes. 

Do you know of any individual carers or ready-formed carers groups who might be interested in helping with the market research and/or with piloting the programmes? If so, please contact Hazel May, Dementia Carers Services Lead for the Royal Surgical Aid Society.


How has the field of dementia care changed in the past 30 years?

In this article, Professor Dawn Brooker writes for us on the challenges and achievements of 30 years of dementia care. What has changed and what still remains to be done?


 

TAnDem PhD update - First viva

We are delighted to report the first TanDem student’s PhD viva. Emily Cousins passed her examination on 25th October, being required to make only minor corrections. We would like to express our thanks to her two examiners, Professors Gill Windle (University of Bangor) and Amanda Griffiths (Nottingham), who complimented Emily on the excellent scholarship of her thesis. Emily’s research aimed to develop a taxonomy (or a way of classifying) of the ways in which arts interventions for people with dementia work: in other words, what factors operate to make arts activities such a valuable aspect of life with dementia. Her studentship has taken her on academic visits to the US and Denmark, and her findings have been published in one journal paper with another submitted for publication.


The Dementia 2020 Citizens’ Engagement: Making England the Best Place in the World for Dementia Care

Have you, or has somebody close to you, been diagnosed with dementia in the last few years? If so, we’d really like to hear from you! 

We are inviting people with a dementia diagnosis, or their main carer (either family or friend) to complete a short questionnaire about your experience of living with dementia. This is an important opportunity for you to share your experiences and maybe help shape and improve services in the future. 

This questionnaire asks you about your experiences of day-to-day care and independent living for the person with dementia and at the end, we will give you the opportunity to sign up to receive further questionnaires in the future.

If you would like to complete this questionnaire and help with this important study, please go online to www.opinionresearch.co.uk/dementia2020panel. You can also view previous reports and see what other people are saying about their experiences.

 If you would prefer to receive a questionnaire in the post, please give us a call and we would be happy to send you one or answer any questions you may have. Please contact Claire Thomas at ORS on 01792 535 337 or claire.thomas@ors.org.uk, or Daniel Morris at ORS on 01792 535324 or daniel.morris@ors.org.uk . 

This project has been commissioned by the Department of Health for England and the work is being carried out by Opinion Research Services (ORS), an independent organisation. 

Thank you for your help and if you have any questions please don’t hesitate to give us a call.

News Archive 2017 

Hay Festival

Claire Garabedian and Laurence Gardiner - using the creative arts to help people with Dementia to live well - University of Worcester - Series 1 

 Claire_and_Frag_-_Sat_Live_-_Aug_2016_rdax_200x246

 

 

News Archive 2016

Dr Claire Garabedian was a live guest on the popular BBC Radio 4 show, ‘Saturday Live’

Claire_and_Frag_-_Sat_Live_-_Aug_2016_rdax_200x246

Dr Claire Garabedian, Research Associate at the University of Worcester's Association for Dementia Studies was invited to London be BBC Radio 4 to be a live guest on the popular show, ‘Saturday Live’ to speak about her experience both as a music practitioner (including some live examples of her playing cello), as well as her research experience working with people who are living with dementia.

Claire, who is a professional cellist and research associate in creative arts and dementia at Worcester University, is a music practitioner and expert in the therapeutic value of the instrument. In the programme she has presenters Richard Coles and Aasmah Mir singing along to her rendition of “You are my sunshine,” a tune she has often used to good effect in care home settings. Talking about her PhD field research in Scotland she says: “Most of the people in the care homes I was playing for had never seen a cello – they called it the giant fiddle or the machine or all sorts of things. It reaches people because it’s got the sound most close to the human voice.” Therapeutic music helps people feel better and improves their wellbeing, Claire says, remembering an occasion when she played for a woman with dementia and her “detached and uninvolved” daughter. “When I started playing the live music she came to life and she started completely interacting with her mother in a way that they had probably not done for many decades. By the end I had stayed for an hour and a half when it was supposed to be 30 minutes – they were so carried away.”

The show aired on 13 August 2016. Pictures from the event can be viewed here.

Dr Garabedian is also a regular contact on BBC Radio Hereford and Worcester addressing current issues regarding people who are living with dementia.

Background message from Prof. Dawn Brooker

 

I think that you may be aware that I have had a long-standing working relationship with colleagues in Japan engaged in person-centred dementia care. This has involved research and well as practice development. Over the years I have appreciated greatly the similarities and differences between our two countries and their approach to dementia care. It has helped me to reflect on the really key issues and to try to be clear in my writing about person centred care. For example, I think if I had never tried to explain Kitwood’s ideas about personhood to a Japanese audience then I would not have developed the VIPS framework.

One of my longstanding research collaborators has been a Professor of Gerontological Nursing at Hamamatsu University called Professor Mizue Suzuki. https://www.hama-med.ac.jp/uni-e_department_community-nursing_home-care-nursing.html Like us, she is trying to develop person centred practice in the acute hospital environment and has developed a scale ‘Nursing Scale for Older Patients with Cognitive Impairments in the Acute Care Hospital’. They have undertaken a factor analysis and reliability and validity testing in Japan.

We have worked with them to translate the scale and we would like to pilot the translated version in the UK with the following aims:-

 1. To assess whether the translated version of the scale can be understood by English speaking health staff;

2. To collect data using the scale which can be compared to previous Japanese data to see if they produce similar results;

3. To explore whether the scale could be useful in the UK context.

Our team would therefore appreciate your time to complete the scale and provide feedback about it by answering the questions following the scale. We are particularly interested in the views of people with a healthcare qualification who have acute hospital experience in supporting people with dementia. The questionnaire is voluntary, and should only take around 15 minutes to complete. The survey is a one-off event and will not require any further involvement from yourself. Full details about ethics etc can be found on the survey.

Graduation 2016

 

The third of November 2016 proved to be a memorable day for the Association for Dementia Studies, with several members of the team, including Professor Dawn Brooker and Simon Evans, attending the graduation of the first students to complete the University of Worcester Foundation Degree in Dementia Studies.

Foundation Degree Graduation

Dr Sarah Milosevic was also awarded her PhD at the same graduation ceremony at Worcester Cathedral. It was so exciting to be witness to their academic achievements being rewarded in such magnificent surroundings.

Sarah_Simon_and_Dawn_1

2016 Hennell Award

April Dobson is Head of Dementia Innovation at The Abbeyfield Society, a national charity has been honoured with the prestigious Hennell Award for Innovation and Excellence in Dementia Care, created by June Hennell MBE in memory of her husband, Brian, a dementia activist who lived with the condition for four years before his death in 2013.

JuneHennell_and_AprilDobson

The Award is open to everyone who has attended a course facilitated by the Association for Dementia Studies (ADS) at the University of Worcester and celebrates the achievements of an individual or team who have shown their ability to implement positive change for people living with dementia.

 

 

 

 

FITS (Focused Intervention Training and Support) programme - Advanced Practice in Delivering Person-Centred Dementia Care Module

Implementing the FITS into Practice (Focussed Intervention Training and Support) Programme in care homes and extra care housing for people with dementia, complex needs and distressed behaviour.

Worcester Researchers Explore ‘Namaste’ Care to Improve Care homes for People with Dementia

See further information here

 

News Archive 2015

New Dementia Service Officially Opened by Henry Sandon MBE Wednesday, 25 November 2015

Droitwich Spa’s new Meeting Centre project for people affected by dementia was officially launched by Henry Sandon MBE, of Antiques Roadshow fame, with a crowd of over 100 people in attendance. 

Pioneer of Dementia Meeting Centres Delivers UK Seminar Wednesday, 18 November 2015

A leading Professor in helping people to live well with dementia has delivered an engaging seminar as the UK’s first specialist Meeting Centre has been launched. 

Birmingham Community Healthcare NHS Trust's Dementia Lead Honoured with Award Tuesday, 17 November 2015

The nurse who is supporting a project to improve services for people with dementia within Birmingham Community Healthcare NHS Trust’s dementia services has been honoured with a prestigious award, given in memory of a dementia activist. 

Researchers Explore the Use of Arts to Improve Dementia Care

Four researchers are embarking on a project to explore how creative arts such as music, dance and drama can improve dementia care.

‘The Arts and Dementia’ (TAnDem) doctoral training centre, funded by the Alzheimer’s Society and jointly hosted by the University of Worcester and the University of Nottingham, is supporting PhD students to investigate the impact of creative arts activities on the increasing numbers of people living with dementia.

Two students, Karen Gray and Amy Veale, are beginning their studies at Worcester and Emma Broome and Emily Cousins will carry out their research at Nottingham. All students will benefit from the wealth of expertise from both universities working together in partnership.

More information on the TAnDem project can be located here.

Stand By Me (Dementia) - Free e-learning course launched on 23rd April 2015.

A new online resource to improve communication and care for people living with dementia was launched at the University of Worcester on Thursday April 23. A copy of the press release is here and further information can be found here. 

Stand By Me, a free e-learning course, has been developed by the University’s Association for Dementia Studies, Skills for Health and key partners, with funding from the Department of Health, and is aimed at health and social care practitioners from all settings to help them deliver high quality, person-centred care to people living with dementia and their families.

Created with the help of experts from Worcestershire Health & Care NHS Trust, Herefordshire Clinical Commissioning Group, Heart of Worcestershire College and Skills for Care, the new online course is based on a series of six short films reflecting a wide range of realistic situations, including visiting the GP surgery, supporting people at home in their own home, moving into a care home, being admitted to hospital, receiving paramedic services and end of life care. 

The scripts were developed from a series of focus groups involving health and social care staff and people living with dementia and their families. Most of the actors in the films are real-life health and social care staff from across Herefordshire and Worcestershire, family carers and people living with dementia. 

A trailer for the e-learning course is available on YouTube

How to access this course 

If you have a NHS email address, please click here to register for an account. When selecting from the options under "Please select your region followed by your trust", choose NHSCLU to access the Stand By Me free e-learning course.

If you do not have a NHS email address, please email elearning@nsahealth.org.uk or call 0844 770 3770 to request an account. (lines are open Monday to Friday, 9am until 5pm).

Enhancing the Healing Environment Programme

We are very pleased to be able to let you know that The King’s Fund and the Association for Dementia Studies (ADS), University of Worcester have agreed to develop a collaborative partnership which will enable the dementia-friendly design work undertaken through the Enhancing the Healing Environment Programme to continue under the auspices of the University from January 2015. ADS will be integrating dementia design into its current research and education portfolio and will be continuing to develop the EHE dementia friendly environmental assessment tools. More information about Enhancing the Healing Environment Programme can be found on the King’s Fund website.

Admiral Nurses significantly improve dementia care support - Leading Care Provider publishes detailed project report on 6th March 2015

The role of Admiral Nurses in care homes has a significant impact on the care and support offered to care home residents living with a dementia according to a report published on 6th March 2015.

 

New Dementia Arts Research Hub Coming to Worcester and Nottingham - 5th February 2015

We are very proud to announce that our doctoral training centre is announced today by the Alzheimer’s Society – one of 8 in the country with a total spend of over £5million form the Alzheimer’s Society  to really make a difference in building research capacity in dementia cure and care in the UK.

Our joint centre will focus on studying The Arts and Dementia and will be known as TAnDEM. It is a partnership between the Association for Dementia Studies at the University of Worcester and the Centre for Dementia, University of Nottingham. Between 2015-2018 TAnDEM will support a number of full-time PhD students to investigate important aspects of the potential for creative arts to help people living with dementia. This will build research capacity and create new knowledge about the impact of arts-based activities and interventions for people living with dementia, their families, friends and professionals (artists and health and care). 

The lead at Worcester is Professor Dawn Brooker with other members of the supervisory team including Dr Simon Evans, Professor Elizabeth Peel, Professor Eleanor Bradley, Dr Karan Jutlla and Claire Garabedian. Professor Justine Schneider is the lead from Nottingham with Professor Tom Dening, Dr Victoria Tischler, Professor Amanda Griffiths also being part of the team there. We are so pleased to be working with Nottingham on this. There is real synergy between our two centres. 

The topic is an important one in dementia. Many families and people working in care know the enjoyment and sense of purpose that singing, music, dancing and creating art work can bring to people at all stages of dementia. As dementia progresses, more cognitive based pastimes can be a challenge but the creative abilities are always open to us. This research programme will enable us to have a concentrated focus to identify how we can use these creative drives for the most benefit to people living with dementia. We will investigate how we can use creativity to help people feel connected to others. In addition we can explore how to evaluate the therapeutic benefits of creativity. We will also explore whether there are particular activities that are more effective at different stages of dementia and the interplay with past preferences and lifestyle. Knowing the answers to these questions will have a benefit to people with dementia and their families. 

 

News Archive 2014

 

Members of ADS were scattered across the globe during November 2014

ADS staff attended conferences in Washington, Tokyo and New Delhi, while those still in Worcester prepared for the UK Dementia Congress which took place in Brighton on 10th-12th November.

Global Dementia Legacy Event Japan, 05-07 November 2014

As a follow on to the G8 Dementia Summit held in London in December 2013, our own Professor Dawn Brooker was invited to speak at the second legacy event held in Roppongi, Tokyo, Japan. The theme of this legacy event was Prevention and Care, and Professor Brooker spoke about the importance of skilled person-centred care. Professor Brooker’s book on person-centred care was translated into Japanese in 2012 and has been influential.

While at the Summit, Professor Brooker attended an evening reception where she talked with members of the Japanese Dementia Working Group (JDWG). This is the first group in Japan of people living with dementia who have formed into the equivalent of a UK DEEP group to raise awareness and decrease stigma about dementia in Japan.

The reception followed a speech at the Summit by Japanese Prime Minister Shinzo Abe who said that Japan will work out a new national strategy to boost measures for dealing with dementia, including working together to support the lives of people living with dementia. He also stated that this would include people with dementia being involved in the process of policy making, which Professor Brooker said she considered to be the first big achievement of the JDWG.

Training in Care Homes Reduces Prescription of Harmful Anti-psychotics to People with Dementia by a Third, 03 July 2014

An innovative training programme for care home staff has cut the use of inappropriate anti-psychotic drugs, which double the risk of death in people with dementia, by a third according to research commissioned by Alzheimer’s Society and launched today.

Media Portrayal of Dementia Could be Impacting Those Living with the Illness, says Professor of Psychology Wednesday, 02 July 2014

Representations of dementia in the media could be having a negative impact on those living with the illness, according to a leading psychologist.

University of Worcester to Pilot New Dementia Programme in Droitwich Spa, 27 June 2014

A Worcestershire town has been selected as the UK location to pilot a new project, implemented and evaluated by ADS in partnership with the Alzheimer's Society.

New Report Highlights Importance of Investing in Nurse Leaders to Improve Dementia Care, 20 May 2014

The Royal College of Nursing has published the results of a major year-long programme, which has seen nine NHS trusts develop innovative ways to improve dementia care in hospitals.

Happy Birthday ADS, 14 May 2014

ADS celebrated its 5th anniversary with an event at the University of Worcester Arena.